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My Life with Cancer

The story of Sharon Leming and her battle with ovarian leiomyosarcoma.

Thursday, March 13, 2008

Another Day

I'm happy to announce that today's blog is not moody. It's basically a boring update on where I am now and where I go from here.

BLOOD COUNTS
Based on yesterday's blood draw, my blood counts are great. My platelets are a little low, and I am low in potassium (but have been for a long, long time). Other than that, both my white and red blood counts are good. Hurrah!

HAIR
This is how I look right now. Kinda scary, huh? My hair is coming out in clumps, and it's getting very thin. Can you see the large tumor sticking up in my hairline? I was doing a "strategic part" to disguise it, but I don't have enough hair left to hide it now. My scalp is dreadfully sore and tender, so much so that I no longer lean my head back on my chair because of the pain it causes. I really should start covering my head, I guess, so I won't scare small children. But I don't want to do it, and besides, it's generally the rude adults who stare at me, not the small children.
CHEMO
So, what in the world do I do about the chemo treatments? My oncologist wants me to continue the current cycle, using only the adriamycin and not the coma-causing ifofsamide (which, BTW, is what I wanted to do in the first place but was overruled by the team of experts). I guess I could do that, but I'm still skittish after the last episode. I just don't know if I can talk myself into submitting my body to another one of those awful treatments. But then again -- what if it's working?

There is, however, another factor that may moot the decision point about the chemo. That is:

BRAIN THING
You may remember me saying after my hospital stay that the MRI shows a small tumor in the lining of my brain. (It is not actually touching my brain -- yet.) Well, what I didn't tell you is that the neurosurgeon there does not think that it is operable. Apparently, it is precariously close to a large blood vessel, and I could bleed to death quickly if it was severed. Cyberknife might be a consideration.

I have an appointment at Vanderbilt on Tuesday, March 18th to get Dr. Weaver's opinion about the tumor. Obviously, if it can be excised surgically, then all chemo would stop until that can be done and I heal completely.
So, there it is -- not a master plan, really, but an overview of what's coming up for me. In the meantime, my strength is improving every day, though I struggle with my appetite and that strange metallic taste. Still, I'm here, and that's no small accomplishment. It's time to make some big decisions, and to enjoy the small things that make living worthwhile.
I hope you're enjoying your blessings, too!
:-) Sharon

12 Comments:

Anonymous mandy said...

Hey Sharon, I'm glad your feeling stronger, and it sounds like your mind has rebounded in a big way from the exhaustion. On another good note. .. It's certainly warmer now than it was last week. The spring air has drifted in. Hope you get a chance to pop outside, and enjoy it!

March 13, 2008 5:53 PM  
OpenID KKalisa said...

Sharon, You sound stronger in your blog. As you get stronger and feel better, I am sure you will be able to think about all the decisions you have to make regarding your treatments and they hopefully won't seem like huge mountains, but rather like little hills to cross. Take care of yourself and rest up!

March 13, 2008 7:45 PM  
Blogger Lorie said...

Hey, girl! I just want you to know that you are beautiful both inside and out! Thanks for the update!

March 13, 2008 11:23 PM  
Blogger Jeana said...

You do look beautiful, Sharon!

Well, the cherry tree blossoms are in full swing. Finally, spring has sprung!

Enjoy and know that you are admired and loved.

Jeana

March 14, 2008 12:09 AM  
Anonymous Anonymous said...

Good Morning Sharon: It's sure good to know your spirits are a bit lighter today. The picture you posted is beautiful actually. Good luck with the news you will be receiving next week. We're pulling for you. You're in the hearts of so many.

By the way, because you mention leaning your head back is uncomfortable, maybe one of those cushiony travel thingies one wears around the neck could be helpful. Just a thought.

God Bless.

March 14, 2008 10:57 AM  
Anonymous Anonymous said...

Hello beautiful lady!! I appreciate all your commentary whether moody or introspective because it helps me to know how to pray for you on a given day.
We are backing you 100% on whatever treatment decisions you make. Take the time to smell the spring flowers and watch the birds and all the glorious signs of resurrection. It can bring peace to your heart.
Love and Blessings to you!

March 14, 2008 12:23 PM  
Anonymous McNasty said...

Hello Sharon. Thank you for the update. I'm glad you're feeling a little better than on your last entry. Best of luck with your appointment at Vanderbilt, here's hoping for good news. Have a great enjoyable weekend.

March 14, 2008 3:45 PM  
Blogger Jay said...

Hi Sharon,

When you look at that picture I don't think you're seeing the same person we are!

You look beautiful.

So glad you're feeling better.

March 14, 2008 7:29 PM  
Blogger SarahStubble said...

You still look beutiful.
Keep your hopes up, and stay strong.
Love lots
Sarah

March 14, 2008 8:19 PM  
Anonymous Anonymous said...

Thanks for the update!! You sound stronger, and i admire u more and more..!! And BTW u still BEAUTIFUL!! U will be always a beautiful women..! I will pray for u..! LOVE!

March 14, 2008 10:11 PM  
Blogger Amy said...

Sharon, the truth is...you look dang good! Seriously! And that thingy on your head is pretty minor, at least in the picture...I had to look to see it! If I passed you, I might think you had a very odd wart on your head. Only people who would be cruel anyway would be cruel about that, and that is about them, not you.

March 15, 2008 2:19 AM  
Blogger frito15 said...

Sharon,

So many things....You have got to be the strongest woman that I have ever met. At least, you sure do put on a brave face. I know that you have times where you cry, kick, scream, & post moody blogs-but gracious, who wouldn't?!?

You seem better today. As you said before...go day by day and just get through another one. It is bound to be better.

Know that you are not alone....as I talk to my friends, sometimes your name comes up...they all say "Sharon, your computer friend" My answer is "No, Sharon, the most determined lady that I have met".

Be strong (or at least fake it through another day)

With love
Sharla

March 15, 2008 10:12 AM  

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