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My Life with Cancer

The story of Sharon Leming and her battle with ovarian leiomyosarcoma.

Sunday, July 6, 2008

Til Human Voices Wake Us

We are home tonight from the beach. Right now I feel exhausted and just a little bit lost, yet relieved at the same time to be home in my chair with my giant foot propped up and the normal sounds of the television and someone playing a guitar and the fan blowing and my fingers clacking on the laptop as I write this message. I am thankful for the quiet, familiar, frenetic energy of home.

Our vacation was a wonderful glimpse of paradise in so many ways. We had an incredible view of the ocean from the large windows on the main level, and dolphins played just off shore while the pelicans hovered over the water in hopes of finding a fish. The ocean was as large and as majestic and as healing as ever, reminding me of the bigness of God and the smallness of me. Josiah was with us, calling me "Momma" and making us all laugh in spite of his fierce sunburn. The kids dug holes and buried each other in the sand and splashed in the salty surf, and when we were not on the beach we shopped for souvenirs in air-conditioned stores that sell boogie boards and flip flops, salt-water taffy and coffee cups, t-shirts and wind chimes and long strands of shells that spin in the breeze.
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I often use the analogy of a roller coaster when talking about my life. Never has it been a more fitting image than this week. There were the highest of highs -- my reunion with Josiah at the airport and the unbridled joy of watching him here and there all week, sharing a cold popsicle with my baby niece, sitting on the beach by the ocean with my whole family frolicking around me, triumphantly tackling the 17 steep steps back up to the boardwalk; there were also the lowest of lows, dark tunnels of which I am loathe to speak. For some reason, I simply could not seem to control my emotions. I cried without warning, lost my temper irrationally, and openly bemoaned the fact that I felt left out of so many activities due to my physical limitations. My family, accustomed to comforting themselves with the fallacy that I am strong and have gracefully accepted my situation, was totally flipped out and took to avoiding me -- which only heightened my feelings of loneliness and abandonment. There were hurtful words exchanged, and I don't know what amount of damage control will be required to pick up the pieces, or if I even WANT to make amends if they can't accept the fact that I am gravely ill and let me FEEL and EXPRESS the pain of it betimes without trying to hide under a plastic smile.

At the same time, I am frightened by my own emotional volatility at this point. It feels like a monster has been unleashed inside of me -- a misshapen, feverish beast borne of pain, fear, loss, helplessness, anguish, and downright fury at my lot in life. I have kept this thing inside of me for so very long, carefully it shoving it down into its box whenever anyone was near, never daring to even admit its presence even to myself. Unfortunately, it has grown to the point that the latch no longer holds it. Like a jack-in-the-box wound one time too many by a child who is supposed to be putting his toys away, it roars to the surface without warning and always at the worst possible moment. I am embarrassed and ashamed about my loss of control. I think I might be a little depressed.

I hope that you will understand that for now the beach pictures are just too painful for me to view or share. They are a snapshot of the purest of happiness, of bliss and relaxation, of sun and sand and sea -- and yet, they are also a painful reminder of the fact that vacation is over and that our beloved son Josiah is on a plane headed for London and that nothing in our lives, good or bad, lasts for very long. When I am feeling a little stronger, I will treasure them and the memories they hold of my whole family gathered together in that beautiful house by the sea -- and I will console myself with the knowledge that nothing, and no one, is ever really gone if they live in our memories and in our hearts.

:-) Sharon

7 Comments:

Anonymous Anonymous said...

They feel so helpless because they can't "fix" this for you. Men need to fix things while women need to express themselves. You have my number when you want to yak again.

Love,
Judy

July 7, 2008 4:10 AM  
Anonymous Anonymous said...

I am sorry you feel ashamed and embarrassed. That can become another burden to carry.

If you can, try to cut yourself the same slack you might give to another in a difficult situation. Maybe that perspective could help relieve those feelings just a bit.

July 7, 2008 1:54 PM  
Anonymous Anonymous said...

Sharon, learning to accept your illness is next to impossible for your children and even adults you are close to. They want to fight one minute and pretend you are fine the next. That is how humans are. The old fight or flee instinct.

Knowing you just the tiny bit I do leads me to believe that your family will get home and think about what happened -- the truth of it -- and come to you with a better understanding of your emotional self and your reality.

Now, give yourself a break by resting and doing familiar things.
Guess what? You are human. It's allowed.

Big Texas Love and Hugs,

Debra

July 7, 2008 4:13 PM  
OpenID strawburyfeeldz said...

Sharon,

Rhonda tells me... Shell, Just keep swimming...Just keep swimming. And I admit I have to repeat it over and over sometimes. This too shall pass love. Family ties are tested, but they are never fully broken. Lean on us whenever you need rest and we will lift you up with love! Anytime sweets!
Love always, Shell

July 7, 2008 5:44 PM  
Anonymous Anonymous said...

You should read "The Law of Attraction" by the Hicks. It is inspiring and may help you deal with your health problems. Best wishes.

July 7, 2008 5:53 PM  
Anonymous Anonymous said...

Oh Sharon, once again I am in tears over your last two blog entries. You have such a talent for drawing a person into your world with your art for words. A gift from God I'm sure.

Let it out. It is not helpful or healthy to always be strong and pretend. Your children and husband (kinda of always a child hehe) do not understand. Some of them might never until they go through it themselves or when the children with the disposition to do so, ponder on it when older. Some people just go into a different mode when faced with difficulties of others. Some kindness right to downright nastiness. The latter is because I think they do feel helpful and angry at "it" not you or the other person.

If you do feel sad at times, let it out though. They will get used to it and it will make them understand better to whatever degree they can. Of course, when you can help it, keep it "normal" as you do. It is no disgrace to follow normal human emotions. No one is keeping score. This is a normal part of the process but the good news is that once you get past perhaps this depression, you will begin to feel better when acceptance comes.

Hate to make this so long, but I once passed out and was near out of it. I felt so peaceful. It was like a natural drug and I had never felt so wonderful and yet was surrounded by paramedics. No I was not even dying. I really believe God put this chemicals in us to help us when we are really in physical trouble. It sure made me feel good to know that I just naturally felt peaceful. Nothing had been administered at that point. I also spoke to a hospice nurse once and she said in over 25 years of doing that work, she has never seen anyone not be at peace. She also said that many many times there was a look of awe on the dying person's face. She had no reason to lie to me as it was not myself in the situation but my mother-in-law who I did not like at all (putting it mildly and politely)! And everyone, including the nurse knew it. Hope you chuckled a little here. It's true.

Anyway, you are in good hands all around. Ebb and flow so go with it.

Angel

July 9, 2008 11:49 PM  
Anonymous Anonymous said...

Sharon,

I was dx with stage IIb, intermediate grade LMS on 11/07. Things are going well for me now as I am in remission. (I'm also a patient of Dr. Forscher at Cedars.)I'm also in your online group.

Your words made me cry and were just what I needed to read. I too try to be the "perfect" cancer patient, and try not to bother my husband, family, and friends with my worries. Things are great for me now, and I feel I'm never to express any fears of the cancer coming back. When I do let myself be vulnerable and talk about it, not very often, I'm somewhat reprimanded by people who love me and mean the best.

You have been through so much. You are HUMAN! Thank you so much for sharing your experience. Nobody knows the right way to feel/react....I lose it over a messy house, you're dealing with realities nearly impossible to bear!

Thank you for telling your story. It has helped me!

Jenifer

July 21, 2008 7:59 PM  

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